Multiple Scleroses: Inside-Out Introduction
Inside-Out Introduction
The theme for my study on multiple sclerosis is "MS From the Inside Out." The work started out as a way to look at MS from a different perspective. The basic theme is the trauma of MS. A few years ago, I visited a hospital and noted a sign that read "Trauma Center." Intuitively I knew the reference, but for some reason, the name nagged at me.The word trauma provokes visions of a TV ER with gurneys, blood, and madness. I decided to find a better explanation. At last, I found that the classical use of trauma means not only the injury but it also includes social and emotional impacts. For a person with a long-term injury, I added disability as an impact area. These 4 impact areas, injury, social, emotional and disability frame my MS study.
Over time , my career in engineering and computers developed my skill over for information modeling. In my early 30’s I was a manager for a group of engineers and programmers. I
was having a devil of a time communicating with staff about job assignments and work activity. A friend
suggested I see a psychologist. Skeptical, I made an appointment. I explained the situation to the therapist. After about 20 minutes, the psychologist said you are fine, you just need some more
tools. She handed me a book called “Frogs into Princes” saying “Read the first
100 pages. Come back if you have more questions.” I never went back. The book
was about neural linguistic programming (NLP). For me, those 100 pages opened the door to
information modeling and enabled many career advancements.
As
humans, our brains store unique abstract information models of
reality. These models are complex integrations of learned experiences biased by
physical constraints, social norms, environmental limits and subjective
discrimination. From the "inside-out" is a statement specific to my information
models. When doing information
modeling, sometimes new and unexpected perspectives emerge. The Blog has a few topics I find interesting. My study includes impact
models for injury, social and emotional areas.
A common theme in many of the models relates to the injury
model.
Because
MS affects the central nervous system resulting from loss of myelin around the nerve
fiber's axons, the effect is loss of quality-of-life. Over time the intervals of immune system attacks remove axon myelin. When the attack occurs,
the biological wound results in inflammation then eventually scarring and
disability. The clinical name for the process is a relapse, an attack, and
remitting, interval between relapses.
However, as a person living with MS, the clinical explanation omits an
important consideration of living with neurological damage. When an MSer experiences an attack, we go to the neurologist to confirm the relapse. If the experience is an attack, the treatment is an infusion of then steroids to promote remission. My model changes the clinical model from the relapse/remittance to an
event model relapse/remission/remodel where remodel is the period between
relapses. This definition of remodeling became a common thread in my MS study.
Remodeling
occurs constantly in life's events. I consider reframing and reshaping as two
general categories of remodeling. Reframing usually refers to modifying the
psychological impact and reshaping usually refers to adapting to the
physical impact. Generally reframing and
reshaping are codependent changes acting as twisted wires bonding the new model.
Consider a common life event of getting up from a chair, walk across the room and out the door. A microscopic analysis could demonstrate millions of coordinated model events occurring in the event's processes. Fortunately, remodeling can be effectively recruited by common practice.
Consider a common life event of getting up from a chair, walk across the room and out the door. A microscopic analysis could demonstrate millions of coordinated model events occurring in the event's processes. Fortunately, remodeling can be effectively recruited by common practice.
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