Multiple Sclerosis: The Social Impact Matrix

-

MS: Social Impact

The Society Box

Inside the Box



Comments

Post a Comment

Thank you for your comment.

Popular posts from this blog

Bicycle: Propel Adaptive Cycling Pedal

-
Image
Propel Adaptive Cycling Pedal I have multiple sclerosis. The disease inflicts neurological trauma and causes nerve-muscule fatigue. An MS attack will limit nerve conduction and in turn, limit muscle to-from engagement.  Nerve fiber conduction has the same four conduction conditions, normal, resistive, open, and shorts as wired circuits.  Open and shorted nerve fibers can exhibit a permanent disability. However, the brian's neuroplasticity can develop adaptive circuits. The Propel pedal began as an adaptive device as a workaround for my MS disability challenges to pedal the trike.  However, the research and development to make the adaptive pedal discovered a new pedaling performance and methodology for all cyclists.  I am a USMC veteran, 68-71.  When an MS release prevented me from doing an upright bike mount, I petitioned the VA's Adaptive Sports Program for a recumbent trike. Before the VA would approve the trike purchase, I had to prove I could ride the trik...
Read more

Multiple Sclerosis: Neurologist and Brain Health

-
Image
Neurologist and Brain Health Neurologists are the enablers that make remodel possible. They help identify relapses, provide the means for remission (steroids) and prescribe DMTs to sustain modeling. They are the relapse-remission-remodel bookends in an MSer's story. By necessity, neurologists are the outside-in viewer. When a doctor makes symptoms diagnosis, that is the art of clinical affinity modeling. My favorite  term I use to describe MS is a neurological complex trauma syndrome (CTS). By itself, trauma has four factors, injury, emotional challenges, social impact, and disability adapting.  A lesion is a wound that injures the complex interconnection of the body systems. Common speak from the outside-in view refers to MS as a disorder of the central nervous system. But as a CTS, the injury is one trauma's factors. While the lesion injuries the interconnected body systems, the wound multiples the complex trauma impact with emotional, social, and disability interc...
Read more

Damn It: Shingles, Postherpetic Neuralgia, Apathy and Grit

-
Image
Shingles Then Postherpetic Neuralgia (PHN) Then Apathy Then Grit Shingles and Postherpetic Neuralgia Selfie Picture On April 7, 2017,   shingles broke out on the upper left side of my face. In about 2 weeks, the shingles pox left, but I spent the next 6 months in bed from postherpetic neuralgia (PHN) pain on the V1 of the trigeminal nerve on the upper left side of my face. The pain from itching was so bad I could not walk.  After more than two years, and the itching persists, but it is not as debilitating. The first PHN drug treatment was gabapentin. It did not work. Ice packs helped. I am glad I am a veteran, and my VA neurologist is a serious doctor.  He switched gabapentin to the drug to Lyrica, and that provided more relief, at least I stopped screaming. I started wearing Lidocaine patches on my forehead.  I made my own concoction of Lidocaine, CBD and THC lotions to replace the patches. I read about some experiments using Botox ...
Read more