Wednesday, November 13, 2019

Multiple Sclerosis: MS Attack Zones


MS Wound Attack Zones


Think about it. You get the feeling something is not right. You deny the possibility the feeling is MS. It has been 24 hours since the feeling stated. Anxiety drives desperation to make a neurologist appointment. Once in the examining room, the medical assistant prompts answers to a litany of questions.  The assistant finishes, stands, then exiting the door, turns and announces, "The doctor will be with you shortly". The door closes and you are alone. Hundred times the same visit scenario happens a the doctor's offices. This time I am sitting stressed about the possibility of an MS attack. My heart knows the truth, but I pray the neurologist will offer an absolution rather than blessing my fear is true. As much as you want it to be, the examining room is not a sanctuary from the fear. The emptiness fills with worry. Am I having an MS attack? Where is that doctor? I do not want to be here. Should I just walk out? Where is the doctor?  I know the doctor’s examination routine. I fear to hear the words. I have been here before. I know what I will do. Again, I will put my grit to work.

The MS Wound Attack Zones illustrates trauma's dual events triggered in both the conscious mind and the brain's neurology. The lesion triggers an alert in the mind that notifies us something is wrong. The picture shows both the neurological and neuro-psych paths emanating from the same MS attack. The conscience mind presents its diagnostic report long before the doctor’s report. The MD makes the determination if the symptoms are MS symptomatic or not.

For an MS attack, neuropsychological (NPL) is a broad term that refers to the behavioral changes caused by the lesion's neurological trauma. NPL therapy includes many treatment domains. The neuropsychologist helps to quantify the trauma. The psychologist's focuses is life quality helps adapt behavioral change.. The physical therapist helps restore the quantity of movement. The personal trainer aid with one to one quantity of life.training. Other therapy professionals focus on other quantity or quality strategies  To thrive, the MSer owns the quantity and quality strategy.

The clinical MS language focuses on the neurological terms lesion, inflammation, and sclerosis. The neuro-psych path is not in the MS language. The NPL path si parallel to the clinical path but with different events. The lesion is the same, but in the NPL path, the trauma triggers the conscious mind into irritation behaviors, like "Get to the neurologist." Just as the lesion’s inflammation leaves scars, irritation leaves mental stigmas. These stigmas are the lasting mind impressions originated by the lesion.

The current MS dialog does not directly speak about the neuro-psych path and how it is a precursor to medical treatment. The doctor's pre valuation requirement instructs the MS a change must last 24 hours or more. The instruction is an NPL irritation but irritation and stigma is not in the neurologist language. Our mind expresses irritation for 24 hours.

The table relates the trauma to symptom treatment.

This paragraph I borrowed and edited from msbrainheath.org: "Brain health A guide for people with multiple sclerosis" as an example clinical narrative and how neuro-psych and neurology present in many explanations of MS.



The capacity of the brain to adapt (remodel) is known as neurological reserve, and the more neurological reserve a brain has the healthier (self) the brain. When someone is feeling well (asymptomatic) , science proved that MS can be active. Research has shown that only about one in 10 lesions leads to a relapse (symptomatic) and that other, less noticeable, damage can be ongoing. If an MSer does not experience new or worse symptoms (irritation), the brain may compensate (remodel) for the damage by using neurological reserves (remodel). When damage uses all the brain's neurological reserve, the brain the MS symptoms may progress (symptomatic).


Tuesday, November 12, 2019

Psyc: Malows Needs Flanigan Wants

Maslow's Needs Flanigan Wants



PPT Slide

Psyc: The Damn It Cycle

The Damn It Cycle



Psyc: Keep your Grit

Keep Your Grit. Keep Your Ability to Thrive. 



 The mood change between apathy and grit is a journey of mood changes. 8 change states and 4 motivation states.

What not is apathy is grit. Each term represents a mood. To find the opposite ask "What not is _______ is __________. What not is confidence is doubt.

To describe a term ask "what is not _________ is________. What is not grit is uncentianly and no passion.

Mood change happens by trigger moods. 8 trigger moods prompt grit. 8 trigger moods prompt apathy.




Thursday, November 7, 2019

Multiple Sclerosis: Neurologist and Brain Health

Neurologist and Brain Health


Neurologists are the enablers that make remodel possible. They help identify relapses, provide the means for remission (steroids) and prescribe DMTs to sustain modeling. They are the relapse-remission-remodel bookends in an MSer's story.

Complex Trauma SyndromeBy necessity, neurologists are the outside-in viewer. When a doctor makes symptoms diagnosis, that is the art of clinical affinity modeling. My favorite  term I use to describe MS is a neurological complex trauma syndrome (CTS). By itself, trauma has four factors, injury, emotional challenges, social impact, and disability adapting.  A lesion is a wound that injures the complex interconnection of the body systems. Common speak from the outside-in view refers to MS as a disorder of the central nervous system. But as a CTS, the injury is one trauma's factors. While the lesion injuries the interconnected body systems, the wound multiples the complex trauma impact with emotional, social, and disability interconnections.

Everybody is an affinity modeler. For doctors, their clinical art is the craft of separating the cause from the effect and the determination of remedy. For an MSer, affinity models frame personal remedy.  Neuroplasticity remodels brain circuits. Affinity remodels the mind. Treatment and training merge to form the affinity models for remodeling MS's trauma.

I believe brain health is essential to being able to remodel. The next step is brain wellness, where the lessons from brain health become asset resources for remodeling. Brain health presents the tools and options for the biological life and safety of brain cells. Brain wellness implants thrive, and health models into the mind.

I think brian-mind a collection of different engines that operate thoughts. The discrimination engine sorts object thoughts,  the memory engine stores, and preserves thoughts, the threat engine escalates survival thoughts, the cognition engine synthesizes calculation thoughts, the activity engine stimulates movement thoughts. These engines and others provide the ability to thrive. The affinity engine receives thoughts, determines similarity, and forwards to other engines. Human affinity models are cognitive constructions of the mind for a similar purpose. For MS remodeling, the affinity models provide the mind, brain, body scripts to adapt trauma and install change.

MS changes the MSer's concept of self.  Fatigue and numbness are two MS symptoms that block environment connection.  The block is like a radiant gradient mesh filtering our kinesthetic sense limiting our ability to accurately know our positions and movements in the environment. Neurological treatments, therapy, and training provide the means to remodel the block. Brain health is a natural resource that sustains remodeling. 

The mind is constantly collecting affinity thoughts into empathy ideas for action. MS neurology trauma affects sense signals and mind interpreters.  Affinity is the reasoning to determine likeness. Our brain collects sense signals that the mind interpreters to thoughts.

MS is a complex trauma syndrome. Replacing the organic term brain-mind to be a more perceptual term, affinity space, enables a better means to understand MS's impact.   The MS lesion damages the affinity space by creating black holes that are the source of the trauma syndrome. The black hole ripple effect generates complex trauma starting the affinity space that radiates out into social and emotional space. to eventually become disability space. Once in the disability space, the will to thrive remodels affinity space to create new universes around the black hole.


Brain health is the gravity of the affinity space.



Tuesday, November 5, 2019

Engineering: Information Modeling ~: Pronouns - why do we care?

Pronouns - why do we care?

If you ever get a chance to work with a client to develop information models for the client's business, pronouns are watchwords that cannot be modeled as facts. However, pronouns do point to the facts and can be used to discover the facts. Pronouns do provide a view of the facts. "send them a bill" "when will it start"

Information modeling is an activity everybody does. From birth to death, our mind constructs information models of our personal world. Everybody's information model is unique. No other person has one's information model. The senses provide the gateway allowing world information to engage with the brain and mind.

Language is an expression of people's information models. Words are the seeds of thought.

The nine types of pronouns indicate the person's internal reference to something else.  It is a fact that pronouns identify something else. but not the actual fact to be modeled. From an information modeling perspective, pronouns are predicates that indicate some type of relationship.

The types of pronouns are types of relationships:

Subjective - Taking place within the mind.
Object - a material thing that can be seen and touched.
Possessive - demanding someone's total attention
Reflexive - directed or turned back on itself
Intensive - highly concentrated
Indefinite - designating an unidentified
Demonstrative - real or true
Relative -  connected with another
Archaic - something from an earlier period

https://www.thefreedictionary.com/List-of-pronouns.htm

List known pronouns
The Free Dictionary Blog > There are more than 100 pronouns.

A list of pronouns, plus definitions for each type of pronoun. Scroll to the end for a full pronouns list.


What is a pronoun?

Pronouns are some of the most useful words in the English language. They are used in the place of a noun to avoid it having to be named twice. For example, Suzy threw the boomerang and it came back to her. In this sentence, "it" is a pronoun that represents the boomerang, and "her" is a pronoun that refers to Suzy. Without pronouns, we'd have to say Suzy threw the boomerang and the boomerang came back to Suzy. Without pronouns, how would we even say "we"?
Here's the full definition.

Definition of Pronoun

In English, the part of speech used as a substitute for an antecedent noun that is clearly understood, and with which it agrees in person, number, and gender. Pronouns are classified as personal (I, we, you, he, she, it, they), demonstrative (this, these, that, those), relative (who, which, that, as), indefinite (each, all, everyone, either, one, both, any, such, somebody), interrogative (who, which, what), reflexive (myself, herself), possessive (mine, yours, his, hers, theirs). There are also pronominal adjectives, sometimes called possessive adjectives (my, your, his, her, our, their).

1. Personal Pronouns / Subject Pronouns

You already know subject pronouns, even if you didn't know that's what they were called. Subject pronouns are used to replace the subject in a sentence. You might also see them called "personal" pronouns, as they designate the person speaking (I, me, we, us), the person spoken to (you), or the person or thing spoken about (he, she, it, they, him, her, them). The following commonly used words are subject pronouns:
  • I
  • we
  • you (singular and plural)
  • he
  • she
  • it
  • they

Personal pronoun examples

I will be leaving soon.
You are welcome.
She is the new teacher.
He speaks three languages.
They are very friendly neighbors.

2. Object Pronouns

Object pronouns are used as the object of a verb or a preposition.
  • me
  • us
  • you (singular and plural)
  • her
  • him
  • it
  • them

Object pronoun examples

They offered me a ride. ("Me" is the object of the verb "offered.")
This letter is addressed to me. ("Me" is the object of the preposition "to.")
They gave us free tickets to the show. ("Us" is the object of the verb "gave.")

3. Possessive Pronouns

A possessive pronoun designates ownership and can substitute for noun phrases.
  • mine
  • ours
  • yours (singular and plural)
  • hers
  • his
  • theirs

Possessive pronoun examples

The green gloves are mine.
That cat is hers.
The red house is theirs.

Possessive Adjectives / Pronominal Adjectives

"Pronominal" describes something that resembles a pronoun, as by specifying a person, place, or thing, while functioning primarily as another part of speech. A pronominal adjective is an adjective that resembles a pronoun. "Her" in "her car" is a pronominal adjective.
  • my
  • our
  • your
  • her
  • his
  • their

4. Reflexive Pronouns

Reflexive pronouns might be the easiest group to remember because they all have one thing in common: the ending "self" or "selves." That's because reflexive pronouns show how the actions of an aforementioned person or group affects him or her (or them).
  • myself
  • yourself
  • herself
  • himself
  • itself
  • ourselves
  • yourselves
  • themselves

Reflexive pronoun examples

I bought myself a new car.
That man thinks a great deal of himself.
We may be deceiving ourselves.

5. Intensive Pronouns

Intensive and reflexive pronouns are actually the exact same words (ending with "self" or "selves"), but they function differently in a sentence. Intensive pronouns not only refer back to a previously mentioned person or people, but they also emphasize. As their name suggests, they intensify.
  • myself
  • yourself
  • herself
  • himself
  • itself
  • ourselves
  • yourselves
  • themselves

Intensive pronoun examples

myself was certain of the facts.
The trouble is in the machine itself.
The cooks themselves eat after all the guests have finished.

6. Indefinite Pronouns

As the word "indefinite" suggests, these pronouns do not specify the identity of their referents. They are more vague than other pronouns.
  • all
  • another
  • any
  • anybody
  • anyone
  • anything
  • both
  • each
  • either
  • everybody
  • everyone
  • everything
  • few
  • many
  • most
  • neither
  • nobody
  • none
  • no one
  • nothing
  • one
  • other
  • others
  • several
  • some
  • somebody
  • someone
  • something
  • such

Indefinite pronouns examples

Both were candidates.
No one is home.
Several of the workers went home sick.

7. Demonstrative Pronouns

Demonstrative pronouns specify a particular person or thing.
  • such
  • that
  • these
  • this
  • those

Demonstrative pronouns examples

I don't much care for these.
Who's that?
Such are the fortunes of war.

8. Interrogative Pronouns

This group of pronouns question which individual referent or referents are intended by the rest of the sentence.
  • what
  • whatever
  • which
  • whichever
  • who
  • whoever
  • whom
  • whomever
  • whose

Interrogative pronoun examples

Who left?
Which of these is yours?
Do whatever you please.

9. Relative Pronouns

Relative pronouns introduce a dependent clause and refer to an antecedent (simply the word or phrase to which a pronoun refers). For instance, who in the child who is wearing a hat or that in the house that you live in.
  • as
  • that
  • what
  • whatever
  • which
  • whichever
  • who
  • whoever
  • whom
  • whomever
  • whose

Relative pronoun examples

The car that has a flat tire needs to be towed.
The visitor who came yesterday left his phone number.
Do whatever you like.

10. Archaic Pronouns

There are several pronouns that have fallen out of common usage but appear frequently in older texts, so there is still a good chance that you will encounter them. "Thee" is an old word for "you" used only when addressing one person, while "thy" is an old word for "your." "Thine" indicates the one or ones belonging to thee.
  • thou
  • thee
  • thy
  • thine
  • ye

Archaic pronoun examples

Thou shalt not kill.
With this ring, I thee wed.
Thy name is more hateful than thy face.
To thine own self be true.

List of all pronouns

A full list of every word that can be considered a pronoun or pronominal adjective:
  • all
  • another
  • any
  • anybody
  • anyone
  • anything
  • as
  • aught
  • both
  • each
  • each other
  • either
  • enough
  • everybody
  • everyone
  • everything
  • few
  • he
  • her
  • hers
  • herself
  • him
  • himself
  • his
  • I
  • idem
  • it
  • its
  • itself
  • many
  • me
  • mine
  • most
  • my
  • myself
  • naught
  • neither
  • no one
  • nobody
  • none
  • nothing
  • nought
  • one
  • one another
  • other
  • others
  • ought
  • our
  • ours
  • ourself
  • ourselves
  • several
  • she
  • some
  • somebody
  • someone
  • something
  • somewhat
  • such
  • suchlike
  • that
  • thee
  • their
  • theirs
  • theirself
  • theirselves
  • them
  • themself
  • themselves
  • there
  • these
  • they
  • thine
  • this
  • those
  • thou
  • thy
  • thyself
  • us
  • we
  • what
  • whatever
  • whatnot
  • whatsoever
  • whence
  • where
  • whereby
  • wherefrom
  • wherein
  • whereinto
  • whereof
  • whereon
  • wherever
  • wheresoever
  • whereto
  • whereunto
  • wherewith
  • wherewithal
  • whether
  • which
  • whichever
  • whichsoever
  • who
  • whoever
  • whom
  • whomever
  • whomso
  • whomsoever
  • whose
  • whosever
  • whosesoever
  • whoso
  • whosoever
  • ye
  • yon
  • yonder
  • you
  • your
  • yours
  • yourself
  • yourselves

Psychology: Grief Experience Source

Grief Experience Source


I used to think external events cause stress and anxiety as an artifact of a grief experience. Psychologist believe a person can self-produce stress and anxiety. If stress and anxiety are artifacts for grief, perhaps grief can be self-produced.

The grief experience table shows four sources of grief.


Grief Experience
Cause by Self
Cause by Others
Known to self
Internal Loss
Unknown to Self
Illness  External

In the table, illness, external trauma and loss are within the scope of normal grief experience triggers. The notion that oneself can knowingly create an internal grief experience suggests grief behaviors like anxiety and stress can be self-induced. As a mental experiment, replacing the word grief in the top-left cell with either anxiety or stress, the words in the cells seem to be just as valid as for grief.
Reference:



Johari window dimensions:

Johari Relationships  Known to self Unknown to Self
Known to others OpenBlind Spot
Unknown to othersHiddenUnknown to  All

Tuesday, October 29, 2019

Multiple Scleroses: Inside-Out Introduction

Inside-Out Introduction

The theme for my study on multiple sclerosis is "MS From the Inside Out."   The work started out as a way to look at MS from a different perspective. The basic theme is the trauma of MS. A few years ago, I visited a hospital and noted a sign that read "Trauma Center." Intuitively I knew the reference, but for some reason, the name nagged at me.The word trauma provokes visions of a TV ER with gurneys, blood, and madness. I decided to find a better explanation. At last, I found that the classical use of trauma means not only the injury but it also includes social and emotional impacts. For a person with a long-term injury, I added disability as an impact area. These 4 impact areas, injury, social, emotional and disability frame my MS study.

Over time , my career in engineering and computers developed my skill over for information modeling. In my early 30’s I was a manager for a group of engineers and programmers. I was having a devil of a time communicating with staff about job assignments and work activity. A friend suggested I see a psychologist. Skeptical, I made an appointment. I explained the situation to the therapist. After about 20 minutes, the psychologist said you are fine, you just need some more tools. She handed me a book called “Frogs into Princes” saying “Read the first 100 pages. Come back if you have more questions.” I never went back. The book was about neural linguistic programming (NLP).  For me, those 100 pages opened the door to information modeling and enabled many career advancements.

As humans, our brains store unique abstract information models of reality. These models are complex integrations of learned experiences biased by physical constraints, social norms, environmental limits and subjective discrimination.   From the "inside-out" is a statement specific to my information models.  When doing information modeling, sometimes new and unexpected perspectives emerge. The Blog has a few topics I find interesting.  My study includes impact models for injury, social and emotional areas.  A common theme in many of the models relates to the injury model.

Because MS affects the central nervous system resulting from loss of myelin around the nerve fiber's axons, the effect is loss of quality-of-life. Over time the intervals of immune system attacks remove axon myelin. When the attack occurs, the biological wound results in inflammation then eventually scarring and disability. The clinical name for the process is a relapse, an attack, and remitting, interval between relapses.  However, as a person living with MS, the clinical explanation omits an important consideration of living with neurological damage. When an MSer experiences an attack, we go to the neurologist to confirm the relapse. If the experience is an attack, the treatment is an infusion of then steroids to promote remission. My model changes the clinical model from the relapse/remittance to an event model relapse/remission/remodel where remodel is the period between relapses. This definition of remodeling became a common thread in my MS study.

Remodeling occurs constantly in life's events. I consider reframing and reshaping as two general categories of remodeling. Reframing usually refers to modifying the psychological impact and reshaping usually refers to adapting to the physical impact.  Generally reframing and reshaping are codependent changes acting as twisted wires bonding the new model.  

Consider a common life event of getting up from a chair, walk across the room and out the door.  A microscopic analysis could demonstrate millions of coordinated model events occurring in the event's processes. Fortunately, remodeling can be effectively recruited by common practice.






Tuesday, October 15, 2019

Multple Sclerosis: The MS Bike


Joseph’s MS Bike

Joseph’s MS Bike tells a story explaining Multiple Sclerosis.

While at a yard sale, laying on the lawn was a dirty old steel bike for $10.  Something about it attracted my attention. The rusted chain hung off the crank gears. The shredded cabling rubber dangled out of the shifter.  The bent wheels would never roll.  The seat rotted away, leaving only the metal frame. The logos and markings were long gone. For an offer of $5, I took it home and stashed it in the corner of the garage and forgot about it. As an ambassador for the National Multiple Sclerosis Society, I give talks about MS and my life with MS. One morning, a dream memory remained. In the memory vision was that yard sale bike but rebuilt, bright with new colors that explained MS.  For ambassador talks, I am always looking for a better way to communicate MS topics and issues.

In a dream vision, I could see a new design perfectly. On the top, down and seat tubes are the words Live, Ride, Believe. The neuron painted on the head tube and forks represent the dark mystery of MS hiding its cause and cure. The lighter spots on the tubes show where MS attacks the myelin on the axons leaving its scars (sclerosis). The orange is for all MS heroes who help MSers and support efforts to find a cure. The white is the belief that MS will be cured. On the chainstay tubes are the words “Stop MS”

As we all know, seeing something in a dream and making it come true are two very different stories. The yard sale bike was a steel frame fitted with 27-inch wheels, 10-speed gears, and the lever gear shifters clamped on the downtube. The brake levers attached to the drop-down racing style handlebars. The bike ventage is in the late 1970s. In the dream, fresh and the new components replaced the original, only the frame and the fork remained.

The MS Bike took weeks to build. All the components had to be acquired.  After sandblasting the paint and rust off the frame,  new powder-coated paint made thee frame look new just off an assembly line. Wheels and gears, cables, brakes and shifters,  handlebars and a seat,  and MS Bike was ready to ride.

The dream became true. The Multiple Sclerosis bike story begins at the head tube where the neuron and axon image showed the dark mystery of MS, with no cause and no cure. The spots of yellow are the scars from the MS lesion. The orange is for all the people who have MS, the support partners and all the people helping to solve the mystery.  The white is the belief MS will be cured.

The MS Bike is Ready


The Parade Ready 



Tuesday, October 8, 2019

Multiple Sclerosis: MS From the Inside-Out ~ Evolution

MS From the Inside-Out ~ Evolution

In 1989, at 40 years old, I was diagnosed with multiple sclerosis. Then in 1993 was the lottery for the first MS disease-modifying treatment drug, Betaseron. By 1996, disability forced the end of my professional career. For the next few years, I continued to follow the traditional MS clinical explanations and recommendations. In 2008, MS started gaining too much power over me. I needed a new approach; I wanted to change myself and change my MS.

After years of physical therapy, treatment at different offices was the same, I found therapists did not know about neurological therapy and treatment for multiple sclerosis clients.  Unsatisfied with physical therapy, l decided to hire personal trainers so the trainer would work for me and not for a medical office.  I had years of physical therapy, I knew my MS, and I decided I needed help with training, not with physical therapy. At first, the idea seemed attainable, but I soon found for treatment I needed both physical therapy and personal training. However, in a little over a year of personal training, I went from occasionally walking with two canes, weighting 300 lbs to riding my fist Colorado Bike MS 150.

When I started training,  I could not find a personal training program that focused on MS.  Before my first personal training session, I knew I would need some techniques to use as the models for the program. Within a few sessions, the idea for the model revealed itself, "rebuild the connections that MS took from me." That idea of rebuilding connections grew into a program I named " Connection Toning." During the early training years, I training by intuition, following the mantra "tell the brain what going to be trained, train the brain, tell the brain what was trained."  Meanwhile, I still had the neurologist visits, the pills, and the disease-modifying treatment injections. And eventually, physical therapy, psychological therapy, occupational therapy, neuropsychology evaluations, nutrition counseling, support groups, and home exercise programs all again became part of my MS life. The mantra evolved, and then, resolved to be "remodel the connections."

MS is only part of an MSer's life. My wife of 20 years is not an MSer, but she lives with my MS too. Our daughter, now living on her own, used to go to MS meetings and sit with coloring books. For every MSer, MS affects at least four or more other people. The clinical replase-remitting disease explanation of MS  does not explain the MSer living with MS, and the impact on others. Species evolution describes the phenomenon of species changes over time. The phenomenon of an MS attack is similar but the change occurs in lifespan. Every MS relapse-remitting cycle causes a persistent lifestyle evolution change. The change affects the MSer and support partners. 

Initial drawings of "Multiple Sclerosis Trauma Evolution" began in 2008 while trying to understand how remodel training fits with the clinical models of MS symptoms.  As the person who experiences MS symptoms, my perspective was from the inside-out view. And the clinical perspective is from the outside-in view. Since both views are for the same symptoms, the same perspective should allow for both views.  The clinical model used the terms relapse-remitting to describe the cycles of symptoms where remitting is the time between attacks. 

The neurologist's outside-in MS explanations describe the three types of MS progression.  As an MS person, MS affects me from the inside-out. The clinical MS progressing types are variations of release-remitting cycles. My MS life with MS knew that between the relapses, something else happens. I experience MS as a series of events. A relapse event triggers treatment for a remission event. After remission is a pause until the next relapse. During the pause, I trained to adapt to the damage caused by the relapse. I realized the pause is another event, and the pauses' training's purpose was to remodel the damage, not just to adapt. The inside-out view is three events, relapse, remission and remodel.

As part of my sessions with the trainers, the term adapting did not reflect the essential purpose of what I needed from training, which is to identify and rewire the MS damage. The name remodel, as a term, describes the three challenges,  identity the trauma, impact assessment, and remedy.  Remodel is a process that begins with identifying the lesion damage, determine the lifestyle impact, and work to remedy a lifestyle.  (Over time I developed my technique for remodeling; provoked fatigue to identify the damage, therapy experts for impact assessments, and training methods for remedy, I hope others can develop better techniques.) 

In other posts, I describe my methods for remodeling. This post explains how both the outside-in and the inside-out description of MS trauma is relapse-remission-remodel. I retired as an Ambassador for the National Multiple Sclerosis Society. When I attended meetings with other MSers, many people told me their MS story. We know the statement, "No two people with MS have the same MS symptoms." Truthfully, those words is the same for most things, "No two people live the same life." "Everybody is different. "Everything in nature is different." In life, the human mind creates models of similarity that makes things appear the same. For training, I needed a better way to explain that remodeling is life long and not just an event between relapses. Another statement we hear about MS is, "No two relapses are the same." The Multiple Sclerosis Trauma Evolution drawing illustrates the relapse-remission-remodel definition; it does not illustrate the lesion's trauma. The drawing recognizes MS's trauma life consequences where disability increases and the ability to thrive decreases.

The human voice produces sound waves where no two utterances are the same. Yet, we can hear and recognize the words. The ocean waves rise and fall where each wake-wave are not the same. Yet, we can see and hear the pattern. The term 'eccentric' means instances in a unique pattern, it also means groups of instances in an observable framework. Each sound wave is an eccentric pattern, yet the accumulation of patterns permits recognitions. MS's trauma leaves disability markers as MS evolves with the repeated eccentric occurrences of relapse-remission-remodel. This is MS from the inside-out. 

The drawing shows relapse-remission-remodel as definable events. MS has two dimensions of disease activity.  On-the-surface is the measurable recognition of lesion damage. Below-the-surface is a disease activity that is not clinically diagnosed.  Remodel is effective for both dimensions of disease activity. Brain health is a major tenet of remodeling. My favorite expression in Connection Toning is "Healthy Lungs, Healthy Brain."  The brain requires 20 percent of the air supply. If the MS activity is above or below the surface,  brain health defuses trauma impact and enables remodeling. 


Inside-Out and Outside-In Views
Everybody responds to disability as their own to manage. The clinical model of MS uses the term loss of the quality-of-life to describe the effects caused by increases in disability.  When I asked myself, what does MS steal from me, the list was long. Unsatisfied with the list, I recalled the doctor's diagnosis of my father's death. On the certificate, the doctor wrote the words "Failure to thrive." Looking at my list again, I realized failure to thrive also meant able to thrive. While quality-of-life is a true statement, it is incomplete. My inside-out perspective accuses MS of stealing my ability-to-thrive.

MS not only stole some of my quality-of-life; MS stole some of my quantity of life. Ability-to-thrive means quality-of-life and quantity-of-life. The ability-to-thrive reveals an intrinsic survival power model for will-to-thrive. Remodeling and will-to-thrive have a direct relationship. Each provides a self-supporting resource for the other, and grit is the result. Grit is the will-to-thrive remedy that dampens the long-term eccentric effects of MS trauma. Grit is the seed that feeds remodel.




From storm to calm,
From relapse to remission,
From remission to remodel,
From wave to wake,
From day to night,
From earth to the moon,
From birth to death,
From neither the same,
From alive to thrive,
From change we know,
From remodel to thrive,
From storm to calm.

Enjoy this Idea

Veteran: First Principles of Veteran Benefits

Veteran: First Principles of Veteran Benefits Anytime an area of interest transforms into another area of interest, the process of transf...

Good Reads