Friday, October 25, 2019
Wednesday, October 16, 2019
Tuesday, October 15, 2019
Bicycle: The MS Bike
Joseph’s MS Bike
Joseph’s MS Bike explains Multiple Sclerosis.
While at a yard sale, laying on the lawn was a dirty old steel bike for $10. Something about it attracted my attention. The rusted chain hung off the crank gears. The shredded cabling rubber dangled out of the shifter. The bent wheels would never roll. The seat rotted away a long time ago, leaving only the metal frame. The logos and markings were long gone. For an offer of $5, I took it home and stashed it in the corner of the garage, and I forgot about it. As an ambassador for the National Multiple Sclerosis Society, I give talks about MS and my life with MS. One morning, a dream memory remained. In the memory vision was that yard sale bike but rebuilt, bright with new colors that explained MS. For ambassador talks, I am always looking for a better way to communicate MS topics and issues.In a dream vision, I could see a new design perfectly. On the top, down and seat tubes are the words Live, Ride, Believe. The neuron painted on the head tube and forks represents the dark mystery of MS hiding its cause and cure. The lighter spots on the tubes show where MS attacks the myelin on the axons leaving its scars (sclerosis). The orange is for all MS heroes who help MSers and support efforts to find a cure. The white is the belief that MS will be cured. On the chain stay tubes are the words “Stop MS”
As we all know, seeing something in a dream and making it come true are two quite different stories. The yard sale bike was a steel frame fitted with 27-inch wheels, 10-speed gears, and downtube lever gear shifters. The off the drop handlebar hung what were once the brake levers. The bike vintage was in the early 1970s. In the dream, the new components replaced the original components. The frame and the fork remained
The MS Bike took weeks to build. All the components had to be acquired. After sandblasting the paint and rust off the frame, a new powder-coated paint made the frame look new just off an assembly line. Wheels and gears, cables, brakes and shifters, handlebars and a seat, and MS Bike was ready to ride.
The dream became true. The Multiple Sclerosis bike story begins at the head tube where the neuron and axon image shows the dark mystery of MS, The yellow spots on the neurons are the scars from the MS lesion. The orange is for all the people who have MS, the support partners, and all the people helping to solve the MS mystery. The white is the belief MS will be cured.
Tuesday, October 8, 2019
Multiple Sclerosis: MS From the Inside-Out ~ Evolution
MS From the Inside-Out ~ Evolution
After years of physical therapy, treatment at different offices was the same, I found therapists did not know about neurological therapy and treatment for multiple sclerosis clients. Unsatisfied with physical therapy, l decided to hire personal trainers so the trainer would work for me and not for a medical office. I had years of physical therapy, I knew my MS, and I decided I needed help with training, not with physical therapy. At first, the idea seemed attainable, but I soon found for treatment I needed both physical therapy and personal training. However, in a little over a year of personal training, I went from occasionally walking with two canes, weighting 300 lbs to riding my fist Colorado Bike MS 150.
When I started training, I could not find a personal training program that focused on MS. Before my first personal training session, I knew I would need some techniques to use as the models for the program. Within a few sessions, the idea for the model revealed itself, "rebuild the connections that MS took from me." That idea of rebuilding connections grew into a program I named " Connection Toning." During the early training years, I training by intuition, following the mantra "tell the brain what going to be trained, train the brain, tell the brain what was trained." Meanwhile, I still had the neurologist visits, the pills, and the disease-modifying treatment injections. And eventually, physical therapy, psychological therapy, occupational therapy, neuropsychology evaluations, nutrition counseling, support groups, and home exercise programs all again became part of my MS life. The mantra evolved, and then, resolved to be "remodel the connections."
MS is only part of an MSer's life. My wife of 20 years is not an MSer, but she lives with my MS too. Our daughter, now living on her own, used to go to MS meetings and sit with coloring books. For every MSer, MS affects at least four or more other people. The clinical replase-remitting disease explanation of MS does not explain the MSer living with MS, and the impact on others. Species evolution describes the phenomenon of species changes over time. The phenomenon of an MS attack is similar but the change occurs in lifespan. Every MS relapse-remitting cycle causes a persistent lifestyle evolution change. The change affects the MSer and support partners.
Initial drawings of "Multiple Sclerosis Trauma Evolution" began in 2008 while trying to understand how remodel training fits with the clinical models of MS symptoms. As the person who experiences MS symptoms, my perspective was from the inside-out view. And the clinical perspective is from the outside-in view. Since both views are for the same symptoms, the same perspective should allow for both views. The clinical model used the terms relapse-remitting to describe the cycles of symptoms where remitting is the time between attacks.
The neurologist's outside-in MS explanations describe the three types of MS progression. As an MS person, MS affects me from the inside-out. The clinical MS progressing types are variations of release-remitting cycles. My MS life with MS knew that between the relapses, something else happens. I experience MS as a series of events. A relapse event triggers treatment for a remission event. After remission is a pause until the next relapse. During the pause, I trained to adapt to the damage caused by the relapse. I realized the pause is another event, and the pauses' training's purpose was to remodel the damage, not just to adapt. The inside-out view is three events, relapse, remission and remodel.
As part of my sessions with the trainers, the term adapting did not reflect the essential purpose of what I needed from training, which is to identify and rewire the MS damage. The name remodel, as a term, describes the three challenges, identity the trauma, impact assessment, and remedy. Remodel is a process that begins with identifying the lesion damage, determine the lifestyle impact, and work to remedy a lifestyle. (Over time I developed my technique for remodeling; provoked fatigue to identify the damage, therapy experts for impact assessments, and training methods for remedy, I hope others can develop better techniques.)
In other posts, I describe my methods for remodeling. This post explains how both the outside-in and the inside-out description of MS trauma is relapse-remission-remodel. I retired as an Ambassador for the National Multiple Sclerosis Society. When I attended meetings with other MSers, many people told me their MS story. We know the statement, "No two people with MS have the same MS symptoms." Truthfully, those words is the same for most things, "No two people live the same life." "Everybody is different. "Everything in nature is different." In life, the human mind creates models of similarity that makes things appear the same. For training, I needed a better way to explain that remodeling is life long and not just an event between relapses. Another statement we hear about MS is, "No two relapses are the same." The Multiple Sclerosis Trauma Evolution drawing illustrates the relapse-remission-remodel definition; it does not illustrate the lesion's trauma. The drawing recognizes MS's trauma life consequences where disability increases and the ability to thrive decreases.
The human voice produces sound waves where no two utterances are the same. Yet, we can hear and recognize the words. The ocean waves rise and fall where each wake-wave are not the same. Yet, we can see and hear the pattern. The term 'eccentric' means instances in a unique pattern, it also means groups of instances in an observable framework. Each sound wave is an eccentric pattern, yet the accumulation of patterns permits recognitions. MS's trauma leaves disability markers as MS evolves with the repeated eccentric occurrences of relapse-remission-remodel. This is MS from the inside-out.
The drawing shows relapse-remission-remodel as definable events. MS has two dimensions of disease activity. On-the-surface is the measurable recognition of lesion damage. Below-the-surface is a disease activity that is not clinically diagnosed. Remodel is effective for both dimensions of disease activity. Brain health is a major tenet of remodeling. My favorite expression in Connection Toning is "Healthy Lungs, Healthy Brain." The brain requires 20 percent of the air supply. If the MS activity is above or below the surface, brain health defuses trauma impact and enables remodeling.
Inside-Out and Outside-In Views |
Thursday, October 3, 2019
Contonx: Everyday Connections
Everyday Connections
Suppose you are in a room sitting in a chair, and you look out a door and see a bright day inviting you outdoors. You stand up, walk across the room to the door, and all of sudden the wind slams the door shut.
- Begin with physical prowess to stand.
- Neurological coordination to walk
- Cognitive planning orchestrates navigation to the door.
- Startle reflex combines the movements into a simultaneous action. The door slamming causes a startle reflex that slams the thee elements into a near-simultaneous event.
Connections in MS
In MS, the immune system attacks the insulating tissue myelin around the axons causing 3 possible electrical conditions.- A circuit open happens when the axon is cut causing axon loss
- Resistance increases due to insulation loss
- Shorts, crosstalk, happen due to the demyelinated axons touching.
All three exhibit fatigue conditions sometimes called nerve fiber fatigue.
In my youth, I had mononucleosis. While mono has several symptoms, the main symptom I remember is the extreme fatigue. I was so weak my mother had to spoon-feed me. In my adult life, I can recall 4 times when the MS fatigue reminded me of being in bed with mono. The other symptom I remember learning to walk again because my legs had no strength. Some say mono and MS may be related biologically. But, I do know fatigue symptoms are comparable.
Remodel Connections
All body positions require tone. Muscles, nerves, bones, blood, and mind work together to maintain tone. The most restful posture requires tone. Movement requires millions of changes in tone. Each change requires connections to transfer from tone to tone. The connection itself is a tone.Wednesday, October 2, 2019
Psyc: What not is apathy is grit
What not is apathy is grit.
To understand something ask two questions:Keep Your Grit
The drawing Keep Your Grit began with the question "What not is apathy?" and discovered grit as the opposite. The change from an apathy state to a grit state means overcoming multiple blocking challenges. Once at a grit state, the same blocking challenges reduce the risk of returning to an apathy state.
Grit Wellness Moods
The Grit Wellness Moods drawing unfolds the eight belief moods to model transition moods between two beliefs moods. Each belief mood has four transition moods. The drawing illustrates the relationships between the eight belief moods, the sixteen transition moods and the four pathway moods.A possible application of the model is an explanation of a person trapped by anxiety is to remodel the risk triggers into constructive rewards passions or to replace anxiety triggers with order tactics to gain certainty.
Something to think about.
Monday, September 30, 2019
Veteran: Comment on the Wolfe vs VA case
Comment on the Wolfe versus VA case
Without the statue, the veteran can claim the money from insurance belongs to veteran and invoice for reimbursement. The statute prohibits double-dipping where insurance and the VA pay for the same medical expense. The VA does not have a regulation to prevent double-dipping.
Furthermore, the VA inappropriately uses the regulation to demand an explanation of benefits confidential business information from the patient and the provider. The Law defines third party to be the insurance company (patient, provider, insurer). The VA switched the third party to mean (VA, veteran, provider).
- Veteran & VA,
- VA and Provider,
- Veteran & Provider.
- Provider and The Veteran Patient,
- Veteran Patient (insured) & The Patient Medical Insurance company (insurer)
- Note: no contract exists between the VA and the insurance company. A reimbursement requires an invoice before payment. Unless the veteran files a Form 10-7078 (or equal) invoice, the VA cannot make rules that bypass the Form.
- Title 38 is Congress’s life grant of benefits to all veterans for the veteran’s national service.
- The Department of Veteran Affairs is Congress’s agent to pay veteran’s benefit expenses from the Federal Budget.
- Title 38 defines the veteran’s benefits and the business rules the DVA uses for operation and payout.
- A veteran’s benefit is a fee for a Title 38 service.
- By Congress’s grant, the veteran owns the benefit, the DHA has the responsibility to provide services and payout from the Budget.
- The DVA is not a veteran. The DVA is an agent of Congress, and cannot own benefits.
- The veteran owns all benefits.
- To receive Federal Budget benefits, the veteran must register with the DVA.
- The DVA likes to market itself as a benefits organization. While pleasant-sounding, the words misspeak its authority and responsibility.
- Section 38 USC 1725 The Law instructs the Secretary to either pay-the-provider or reimburse-the-veteran.
- Pay-the-provider and reimburse-the-veteran is a formal business process of invoice and payment.
- Contract law and privacy law are the frameworks of business rules.
- NVLSP allowed the VA to use the terms copayment, coinsurance, and deductibles in defense arguments. These terms copay and coinsurance mean two payers, the insurer copay and the insured copay. The VA created a regulation for the insured copay; however, the Law applies only to insurer copay. The term deductible is not in 38 USC 1725. If the DVA does follow the Court, the veteran can double-dip on other payments made directly to the provider. It is simple, the medical insurance payout is the property of the insured. When insurance pays a provider, the insurer acts as a broker for the insured to pay the bill for the insured.
- NVLSP allowed the VA to use the explanation of benefits (EOB) information to deny the veteran benefits. In a community provider episode of care, the EOB is private information, and the VA has no legal right or authority to demand.
- NVLSP allowed the VA to claim itself as the first party in separate contracts. The Law defines the veteran as the first party.
- NVLSP allowed the VA to substitute medical expense (fees for a medical service) for insurance expense (cost of insurance)
- NVLP allowed the VA to limit the meaning of copay and coinsurance to mean the patient's share rather than the insurer's share.
- The CAVA, NVLSP, and the VA tend to use the term reimbursement as a gratuitous act and not as a formal business process.
United States Court of Appeals for Veterans Claims Docket Case Number:18-6091
Case NO. 18-6091 AMANDA JANE WOLFE AND PETER E. BOERSCHINGER, PETITIONERS,
Thursday, September 19, 2019
Contonx: Contonix Exertion Scales
Thursday, September 12, 2019
Multiple Sclerosis: The cause of my MS.
The story just sounds like being overworked. The fatigue was MS. At the time, the fatigue appeared as job stress. The one thing I recall was not walking well and the legs being wobbly. Years later, I learned that wobbly walking is a symptom of MS.
Could something have happened to me between 18 and 21 that caused MS? I am the only MSer in generations of past and present family members. I have an idea about what happened to me that is exclusive of others. I am still working on the idea.
Tuesday, September 10, 2019
Psyc: Fear Threat Reactions
Fear Threat Reactions
When faced with a perceived threat, humans and animals exhibit a range of fear-threat reactions. These reactions are physiological and behavioral responses that help individuals cope with the perceived danger and protect themselves from harm. The most well-known fear threat reactions are the "fight-or-flight" responses, but there are other adaptations that organisms may employ in the face of fear.
Fight-or-flight response
The fight-or-flight response is a common physiological and behavioral reaction to perceived threats. This response is mediated by the sympathetic nervous system, which triggers a cascade of physiological changes that prepare the body for action. These changes include:
Increased heart rate and blood pressure: This provides the body with the necessary oxygen and nutrients to fight or flee.
Muscle tension: This allows for rapid movement and defense.
Dilated pupils: This enhances vision in low-light conditions, which may be necessary for escape or defense.
Release of hormones: Hormones such as adrenaline and cortisol prepare the body for action and increase alertness.
The fight-or-flight response is characterized by two primary behavioral options:
Fight: This involves confronting the threat directly, either verbally or physically.
Flight: This involves fleeing from the threat to a safe location.
The choice of whether to fight or flight depends on various factors, such as the perceived severity of the threat, the individual's assessment of their own capabilities, and the availability of escape routes.
Reaction | Description |
---|---|
Fawn
|
Hide - make oneself invisible, the threat still exists.
|
Fight
|
Attack - self-defense by disarming the threat
|
Flight
|
Run - move away as fast as possible.
|
Freeze
|
Stop - cannot move, moving an make the threat worse
|
Finesse
|
Wade - Facing the threat and preserve anyhow.
|
Forget
|
Ignore - The cause for fear is not a threat.
|
Fold
|
Surrender - Give up, accept the fact the threat is beyond one's control.
|
Fade
|
Backup - Disassociated from the threat.
|
Neurological Reactions
The neurological reactions, also known as the "four Fs," involve specific neurological pathways and activations. These reactions are:
Fawn: The fawn response is associated with the activation of the parasympathetic nervous system, which promotes relaxation and conservation of energy. This response is mediated by the release of neurotransmitters such as gamma-aminobutyric acid (GABA) and acetylcholine.
Fight: The fight response is mediated by the sympathetic nervous system, which triggers a surge of hormones such as adrenaline and cortisol. These hormones prepare the body for physical action by increasing heart rate, blood pressure, and muscle tension.
Flight: The flight response, like the fight response, is mediated by the sympathetic nervous system. Adrenaline and cortisol play a key role in this response, preparing the body for rapid movement and escape.
Freeze: The freeze response is associated with the activation of the dorsal vagal complex, a part of the nervous system that regulates freeze behavior. This response is mediated by the release of neuropeptides such as opioid peptides, which promote stillness and reduce pain perception.
Neurocognitive Reactions
The neurocognitive reactions, also known as the "four Fs," involve cognitive processes and emotional regulation mechanisms. These reactions are:
Fade: The fade response involves suppressing or diminishing the emotional intensity of the fear response. This is achieved through cognitive reappraisal, which involves changing the way one interprets the threatening situation.
Fold: The fold response involves avoiding or withdrawing from the perceived threat. This may involve physical avoidance or mental disengagement from the situation.
Forget: The forget response involves suppressing or erasing memories of the fear-inducing event. This is thought to be mediated by the hippocampus, a brain region involved in memory formation and consolidation.
Finesse: The finesse response involves managing or controlling the expression of fear, often through coping strategies such as deep breathing or relaxation techniques. This response is mediated by the prefrontal cortex, a brain region involved in executive function and decision-making.
Phases of a Fear Threat Reaction
The four shock phases of a fear threat reaction are:
Trigger: This is the initial phase, where the individual perceives a threat and the fear response is activated.
Action: This is the phase where the individual reacts to the threat through either neurological or neurocognitive reactions.
Recovery: This is the aware phase, where the individual's physiological and emotional state returns to baseline.
Reaction: This is the safety phase, where the individual makes cognitive plans to change risks associated with the trigger.
Monday, September 9, 2019
Contonx: Four Square Fitness
S - Strength
A - Agility
F - Flexibility
E - Endurance
Monday, September 2, 2019
Pysc: Did Adam Have a Bellybutton?
If the proposer and the proposed have a mutual context with similar exposure to bible stories, the Question's proposition is a philosophical interrogation related to creation and God. Four options provide the bases for opinions.
- Creationist -- No. God created Adam, therefore no need for a bellybutton.
- Evolutionist -- Yes. Homo sapiens evolved as a biological natural occurrence.
- Interventionist -- Yes. Some eternal force triggered evolutionary species to gain abstract rational thought. The bible story suggests God choose the homo sapien Adam to have free will. Perhaps some other unknown source of external force triggered or deposited a person with advanced brain capability.
- Exclusionist - No. Knows about the story but discards it and considers the story fiction.
1. Inquisitive - Why is Adam's belly button important?
2. Rationalist - What is the reason for the question?
3. Knowlege - No concept of creation.
4. Indifferent - I don't care.
5. Unknown - Not discovered.
6. Not important - No. important and unimportant are still important. Not important means no existence to make important.
7. Alternative - A different story about creation.
The world is full of different tribes and cultures. Each may have similar ideas about creation or the lack of ideas itself. A rock has a complete response.
Enjoy this Idea
A collection of Joseph Flanigan's drawings
A collection of Joseph Flanigan's drawings.
Good Reads
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Propel Adaptive Cycling Pedal I have multiple sclerosis. The disease inflicts neurological trauma and causes nerve-muscule fatigue. An MS ...
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Neurologist and Brain Health Neurologists are the enablers that make remodel possible. They help identify relapses, provide the means f...
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The Newbility Bicycle This is the story of Newbility - the new ability to ride my bicycle When I started riding in 2007, because of the MS i...